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PANS PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition. 

Age Range(s)

  • 4 - 19

Who to contact

Contact Name
Paula Scott
Contact Position
PA to Chair of Trustees and Community Support Executive
Telephone
Email
paula.scott@panspandasuk.org
Website
PANS/PANDAS UK Website
Notes

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Where to go

Notes

All of Salford covered.  We provide support via our Facebook group PANS PANDAS UK.

Time / Date Details

When is it on
Monday to Sunday
Time of day
Afternoon
Evening
Morning

Availability

Referral required
Yes
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.