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Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. 

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

 

Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and development manager
Telephone
Email
info@nystagmusnet.org
Website
Website address

Where to go

Name
Nystagmus Network
Address
70 Hyde Vale,
London
SE10 8HP
London,
London
Postcode
SE10 8HP
Notes

We operate a virtual service on live and over the telephone 24/7 support and advice available

Time / Date Details

When is it on
Office hours daily. 24/7 website support
Session Information
Monthly zoom meetings and telephone access 9/5 weekdays

Availability

Referral Details

We provide support and assistance to children and young people with Nystagmus. in addition, we offer an advocacy service and free 24/7 support on our website. telephone helpline and e mail facility is also available free of charge

 

Costs

Table of costs
Table of costs
AmountCost Type
NIL per year
Details
No charge for our services however membership is available but not a requirement for free support and information