Nystagmus Network
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Age Range(s)
- All ages
Who to contact
- Contact Name
- Sue Ricketts
- Contact Position
- Executive Information and development manager
- Telephone
- 01427 718 093
- info@nystagmusnet.org
- Website
- Website address
Where to go
- Name
- Nystagmus Network
- Address
-
6, Lancaster Gardens
Kingston upon Thames
- Postcode
- KT2 5NL
- Notes
Registered charity address only.
Time / Date Details
- When is it on
- Office hours daily. 24/7 website support
- Time of day
-
Afternoon
Evening
Morning - Session Information
-
Monthly zoom meetings and telephone access 9/5 weekdays
Availability
- Referral required
- No
- Referral Details
We provide support and assistance to everyone with Nystagmus, in addition, we offer an advocacy service and free 24/7 support on our website. A telephone helpline and email facility are also available free of charge
Costs
- Table of costs
-
Table of costs Amount Cost Type NIL per year - Details
- No charge for our services however membership is available but not a requirement for free support and information